Good News!

Hello Everybody!

So, I called my Hematologist on Monday to get my CT results appt; they called back Tuesday morning and had an opening for 11:15am. This of course made me nervous...why were they getting me in so fast? But the results are super-positive!

Never have I been so happy as to be defined as 'unremarkable' but in the world of CT scans and lymph nodes this is a very, very good word!

Dr. Mcphaden stated that as far as CT findings would go this is about as positive a report that I could hope for and I should feel very comfortable with it. Basically all of my nodes have shrunk down to 'teeny-tiny' [note: teeny-tiny is not a medical definition :-) ]. In my paratracheal region (think along the throat) my largest node is 8mm which is well within the boundaries of normal (range is up to 1.2cm), all of my organs are completely normal in appearance, as is my lung and diaphram regions, my periaortic (upper chest where I had my 2nd biopsy in Dec.08) has a 'small residual node' of 1.2cm (and any nodes are considered normal in this area up to 1.5cm), so all is good - my Doc thinks that as this originally was a rather large mass in my chest the residual is just scar tissue, etc.

Happy, Happy - Joy, Joy. I am...relieved...and elated...to say the least.

My Doc is very agreeable about my position on monitoring in the future (I would like CT scans every now and then in addition to bloodwork and chest x-rays as my bloodwork pre-diagnosis showed nada while the scan proved growth). So, in 6 months time he will re-scan me for comparison and prior to that (yesterday, and again in 3 months) he will review bloodwork for any indicators. As of now, I am in remission.

Remission. It is a beautiful world. Ask anyone who has been told it and the loved ones who look forward to it. Remisssssssssion. Fan-bee-u-tee-ful-tastic!

So, my Doc scheduled another 3 months before re-assessment thus I see him again at the end of September; we will then again discuss my energy/lethargy progress, mental concentration, etc. and go from there. Until then I continue to regain energy in baby steps and now, without the worries of 'non-success of SCT' on my shoulders, I can breathe much easier.

I hope for you all that your spirit will feel as light as mine does today. Thank you for all of your blessings, good thoughts, support - it worked!!!

With gratitude,

Carey

Checking In...

Hello Everybody,
I had my scan on the 16th. Very uneventful. The wait was 3.5 hours due to emergency and hospital patient bumps...excruciating staring at the powder blue walls of the hospital as there was not a magazine to be found in the whole wing until they came by and distributed some about 20 min before my scan...they were new and had some good gossip in them-- Jon and Kate might separate!...but I digress...
The actual scan only took 5 minutes. I have to make an appt. next week with my doc to get the results - will post again when I have a date and time.
Other than that, not a lot going on in the household - I had a very low key birthday obviously...lots of cards and well wishes, thank you! Hayden is enjoying his summer - he is outside a lot more with walks with his Grandma to the pond to see the baby ducks and goslings and playing outside with Pete; chalking the driveway and playing mini-basketball. His daycare even had a day-trip to Bronte Park the other week that he really enjoyed.
Pete has 99.9% finished putting in a deck off of the kitchen (quite beautiful) and he put out the patio furniture including a nice lounge chair for me to get in to. I was out there a couple of days last week but it was soooo chilly I was cocooned in blankets and did not last long. The weather definitely seems to be getting nicer so I plan to enjoy some resting time out there in the weeks to come (with LOTS of sunscreen to protect my head of course!).
Take care everyone!
Carey

Scan Booked

Hello Everyone,
Just a quick update: My CT Scan has been booked for next Tuesday June 16th at noon. This is my 1st scan post-SCT. Fingers are crossed...
My best to all-
Carey

The Giving Spirit

Hello Everyone!
So, how many people does it take to save one life?
It can be many, or, it can be just one person…the right person – the perfect match.
For people in car crashes or... falling out of trees or... involved in a police type scenario, your savior may be a singular person. For people with severe medical conditions such as a cancer, it usually takes a team but even in the cancer world you are sometimes waiting for that ONE HERO.
For me, my life was definitely a team effort. If not for the multiple persons who donated their blood and platelets, I could have died. That is a fact. If not for the people who gave to cancer research in order for auto stem cell transplants to exist, I could have died. That too is a fact.

Thank you to whatever higher power there is that those people walk amongst us with a giving spirit. (And I recognize that the giving spirit does not just apply to ‘my causes’ but heck, those are the ones I am appreciating just for today).

Just before I had to leave work I sent out an email to some persons at my employer and in my personal life…aside for the ‘see you soon’ parts I wanted to send out a brief message about that giving spirit. Below are some extracts from my original email:

‘…Please consider giving blood. …Through this ordeal, I may require one if not several transfusions due to low counts – I probably will not receive ‘your’ blood specifically but there are thousands just like me out there who could benefit from this selfless act. …Please listen for local blood drives in your community and consider making a donation…or call 1 888 2 DONATE (1 888 236-6283).

Second, consider being a Hero. My stem cell and bone marrow transplant is autologous. …Others whose auto transplants have failed or simply were not candidates for auto transplants must wait and hope for matching donor stem cells. There is a national registry for Stem Cell/Bone Marrow donors. It is located at www.blood.ca or http://www.onematch.ca/. It is a…simple process on the …donors part and if someday you are a match – you will save a life. …Please consider this gift. The web-links <in bold blue font>, offers great information for you. Imagine that – saving a life. There is nothing more heroic.’

Robin Rocca (http://www.myspace.com/helprobinrocca) is a 28 year man from New Brunswick who has come to Ontario asking for just one person to save his life. That is all he needs – that one person. He has a blood cancer that is a cousin of what I had – leukemia. His cancer is aggressive and his family is not a match for him…neither is anyone in the Stem Cell Donor bank at http://www.onematch.ca/ either…yet.

As Robin explains:
‘OneMatch is a program through the Canadian Blood Services. And they do unrelated donor testing,” he explains. “You can sign up online at onematch.ca, and request to be a donor. And then what they will do is a swab kit in the mail. You basically swab the inside of your cheek to get a couple of cells and then from there they can get your [genetic] typing and they put you in the registry.”
If a person’s genetic typing matches up with someone who needs a donor, they can volunteer to donate their stem cells. The procedure is easy, and the stem cells are drawn from the blood and not the bone marrow. “What happens is I basically get infused with your blood,” Rocca continued. “They don’t have to go in and poke your bone marrow, or poke your bone and pull out stuff. They can actually pull it straight from your blood.”
For those interested in learning how to help patients like Robin Rocca can visit http://www.onematch.ca/ to learn about eligibility for the program and register online.’

The current data bank for Robin, plus approximately 750 other Canadians, does not currently contain their match – they are waiting for their match to register and become a donor to save their life. (If you are ineligible to be a donor or for whatever reason choose not, please consider giving blood and platelets the next time the opportunity arises).

Just think about it and click the sites to see if this is the type of gift you may consider giving. No obligation. P.S. Already some family members + friends have let it be known to me that they made them self part of the One Match list – thank you.

On another note/update – I am tired and continue to sleep and sleep and rest and rest but it is all good and I know I am healing and am happy that my turn of events has put my in the position of ‘survivor’.

With ongoing gratitude,
Carey